66 Mount Lucas Road, Princeton, NJ 08540-2733, USA
tel 609-924-4892, fax 609-921-9380
Books about Chronic Illness
Mark B. Levin, M.D., F.A.A.P.
John M. Cotton, M.D., F.A.A.P.
Timothy J. Patrick-Miller, M.D., F.A.A.P.
Louis J. Tesoro, M.D., F.A.A.P.
Helen M. Rose, M.D., F.A.A.P.
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Dr. Levin: levin@pedgroup.com
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Dr. Patrick-Miller: pmiller@pedgroup.com
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Dr.Rose: rose@pedgroup.com
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Information: information@pedgroup.com
We are happy to answer any general questions about medical topics and about ouor practice. We can answer specific questions only regarding patients who are currently enrolled in our practice.
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[GENERAL] [ASTHMA] [DIABETES] [CEREBRAL PALSY] [CYSTIC FIBROSIS]
What If They Knew?, Patricia
Hermes, Harcourt, Brace and Janovich pub 1980 (young
girl tries to hide her epilepsy from friends, but realizes having
epilepsy is nothing to be
ashamed of; for children aged 10-12)Angie and Me, Rebecca Jones,
Macmillan Publishing Co 1981 (Jenna makes a
courageous effort to accept Juvenile Rheumatoid Arthritis; for
children aged 10-13)
Just Like Always, Elizabeth Ann
Sachs, Atheneum pub 1981 (two girls hospitalized for
corrective surgery for scoliosis develop a close friendship and
help each other cope with
their hospital stay; for children aged 11-13)
The Sick of Being Sick Book,
Jovial Bob and Jane Strine, Illus by Carol Nicklaus,
E.P.Dutton pub 1980 (a funny book which can help children pass
the time when they are
sick in bed; for children aged 9-13)
There Is a Rainbow Behind Every Dark Cloud,
Center for Attitudinal Healing, Celestial
Arts pub (A group of children with serious illness describe their
fears about their illness
and possible death)
Caring For Your Disabled Child, B. Spock and M. Lerrigo, Macmillan pub 1965
Nicole’s Story: A Book about a Girl
with Juvenile Rheumatoid Arthritis, Virginia
Aldape, Lerner Publications 1996 (Eight year old skates in the
Special Olympics; ages
5-10)
Young People and Chronic Illness: True
Stories, Help, and Hope, Kelly Huegel, Free
Spirit Publications 1998 ( Children with hemophilia, asthma,
cystic fibrosis, sickle cell
anemia, cancer, and spina bifida talk about their lives; ages
9-12)
Easy For You to Say: Questions and Answers
for Teens Living with Chronic Illness or
Disability, Miriam Kaufman, Key Porter Books Ltd
(distributed by Firefly Books) pub 1995 (family relationships,
medical issues, sexuality in teens with sickle cell anemia,
cystic fibrosis and muscular
dystrophy; ages teens to young adult)
I’m Tougher Than Asthma,
Alden and Siri Carter, Albert Whitman & Co pub 1996 (true
narrative; ages 4-8)
The Asthma Attack by Bo B. Bear,
Charlotte Casterline, Info-All Book Co pub 1998 (a
boy and his stuffed bear cope with asthma; ages 3-5)
Sportsercise: A School Story about Exercise
Induced Asthma, Kim Gosselin, Jayjo Books
pub 1997 (boy and girl take meds and compete; ages 6-9)
Young People and Chronic Illness: True
Stories, Help, and Hope, Kelly Huegel, Free
Spirit Publications 1998 ( Children with hemophilia, astma,
cystic fibrosis, sickle cell
anemia, cancer, and sopina bifida talk about their lives; ages
9-12)
The Lion Who had Asthma,
Jonathan London, Albert Whitman & Co pub 1997 (Sean
pretends to be a pilot with his asthma mask and, when well, a
roaring lion; ages 3-6)
All About Asthma, William and
Vivian Ostrow, (William talks about his asthma; ages
6-10)
Where’s Buddy?, Ron Roy,
Illus by Try Howell, Clarion Books pub1982 (a seven year
old and his brother learn to accept responsibility in following
medical advice to keep
their diabetes under control; for children aged 8-11)
Sugar Was My Best Food, Carol
Antoinette, Albert Whitman & Co pub 1998 (Juvenile
Diabetes Melitus-true story of coping; ages 9-12)
Sarah and Puffle: A Story for Children
about Diabetes, Linnea Mulder, Magination Press
pub 1992 (Sarah’s toy lamb helps her cope with Diabetes;
ages 4-8)
My Sister Rose has Diabetes,
Kathy Parkinson, Health Press pub 1997 (Brother feels
forgotten when ill sister gets all the attention; ages 8-12)
Even Little Kids Get Diabetes,
Connie White Pirner, Albert Whitman & Co pub 1991
(text and picture of a young girl dealing with Diabetes; ages
3-8)
Going Places: Children Living with Cerebral
Palsy, Thomas Bergman, Gareth Stevens
Children’s Books pub 1991 (narrative by a 6 yr old with
C.P.; ages 9-12)
I’m The Big Sister Now, Michelle
Emmert, Albert Whitman & Co pub 1991 ( a 9 uear
old has an older sister with Cerebral Palsy; ages 7-11)
Howie Helps Himself, Joan
Fassler, Albert Whitman & Co pub 1991 (Howie in a
wheelchair because of Cerebral Palsy; ages 4-8)
A Time to Die, Lurlene McDaniel,
(165 year old Kara worries about her future with
cystic fibrosis; ages 12 and up)
Easy For You to Say: Questions and Answers
for Teens Living with Chronic Illness or
Disability, Miriam Kaufman, Kwey Porter Books Ltd pub
1995 (family relationships,
medical issues, sexuality in teens with sickle cell anemia,
cystic fibrosis and muscular
dystrophy; ages teens to young adult)
Young People and Chronic Illness: True
Stories, Help, and Hope, Kelly Huegel, Free
Spirit Publications 1998 ( Children with hemophilia, asthma,
cystic fibrosis, sickle cell
anemia, cancer, and sopina bifida talk about their lives; ages
9-12)
My Heart Is Full of Wishes,
Joshua Grishaw, Raintree-Steck Vaughn pub 1995 (a boy
with Cystic Fibrosis; ages 4-8)
The Spirit of Lo, Terry and Don Detrich, 1999 (A family describes their tribulations raising a CF child)
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